Wrap up of EDS AWARENESS month.

May 2020 was a goodie! Having been EDS awareness month and Zebra Blends (ZBs) launch month and having had both of these events occurring smack bang in the middle of a global pandemic, I really was unsure how things would pan out. But I am calling - SUCCESS.

What a heart warming response to the launch of ZBs. All the feels were felt, love, support, encouragement and generally a sense of being cheered on by the small yet formidable community being created across ZBs social media channels.

A total of $407.97 was raised, coming directly from sales of products available on the Zebra Blends online store. 

$204 has been directed to each of the charities ZBs has chosen to support. These being The Ehlers-Danlos Society and Rare Voices Australia. Two charities that lie very close to my heart for the tremendous efforts they afford to the rare disease and chronic illness communities around the world.

Together we can work towards a world where, rare is recognised and timely access to treatment is the norm. As maybe it is not that we are actually as rare as thought but just rarely diagnosed. 

 

 

 


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