May is EDS Awareness month and we are getting behind it

May is Ehlers-Danlos Syndrome (EDS) awareness month. EDS is a rare connective tissue disorder and as connective tissue is found right throughout the body, it can look very different in presentation from patient to patient. An analogy I heard a doctor use once to describe it, is to think of the connective tissue as the concrete holding your body together. And that the concrete (connective tissue) in an EDS body is the quality of the concrete that built Naples not Rome, in essence - it’s pretty crappy.


It seemed fitting that we were ready to launch right at the beginning of May (EDS awareness month) as such Zebra Blends (ZBs) has decided to not donate 50% of profits to our chosen charities (as we plan to usually), but for the entire month of May, ZBs will be donating 100% of profits to these amazing organisations, that work tirelessly to to raise awareness, fund research and advocate for rare diseases and the people affected by such diseases. 


The chosen charities where we will direct profits, are The Ehlers-Danlos Society and Rare Voices Australia. More can be read about these two charities and links to their websites found on our ‘community’ page. 

So, until next time. 

Janna ZBs x

 

**Please feel free to fire away below with any comments or questions. 

 


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